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There are many different ways to build awareness for a rare disease. One way is through events, events tied to the loss of a loved one to that rare disease. Multiple system atrophy is one such disease. Rare and devastating disease to be exact. Events that raise awareness and dollars oftentimes become a part of the life of those who have lived with and cared for an MSA patient.
PRESS RELEASE FOR IMMEDIATE RELEASE
Organizers are excited to announce the presentation of Beat MSA! and the tentative lineup. This music event will be held at the Monarch Music Hall in Peoria, IL on World MSA Day, October 3, 2019.
Tickets can be purchased using the link below or through the Monarch Music Hall website.
Beat MSA! is a Live music event for the general public that will raise awareness of multiple system atrophy (MSA), aka “Parkinson’s on steroids”, and financial support to benefit the Multiple System Atrophy Coalition’s research grant program.
Heading up this event is Dr. Larry Kellerman. Dr. Kellerman is a member of the MSA Coalition Board of Directors and has organized and held Gettin’ The Word Out! fundraisers in Peoria in March, MSA Awareness Month and March Madness time.
Beat MSA! will share information about MSA, musical entertainment and a silent auction with donations from blues artists and college basketball programs, the two forms of entertainment Larry and his wife shared.
Colleen Kellerman lost an 8-year battle with MSA, a progressive neurodegenerative disorder characterized by a combination of symptoms that affect both the autonomic nervous system (the part of the nervous system that controls involuntary action such as blood pressure or digestion) and movement.
MSA is a rare and 100% terminal disease affecting 15,000-25,000 Americans and 380,000 citizens world-wide. Patients succumb to the disease 7-10 years after onset of symptoms. There are no disease-altering or life saving treatments for patients at this time. The cost to care for a family member with “Parkinson’s on Steroids” is, on average, $44,475.00 annually, or one-third of a family’s annual income.
For these reasons and for the patients and caregivers who travel an MSA journey, Beat MSA! will contribute to the goal of finding a cause, cure and/or treatment, while providing great live entertainment.
This amazing evening of music will be hosted by Rick Halberg of Rick Halberg and Friends,
There will be other great artists performing with these bands throughout the evening. They include 2019 Grammy nominee and Blues Music Award Winner Danielle Nicole along with Brandon Miller of the Danielle Nicole Band. Lizzi Neal and the Lizzi Neal Band will join the others on the main stage, while Hoosier Daddy, led by Cindy Youngren will open the evening’s festivities. This lineup is subject to change and more artists are expected to join.
Tickets will go on sale at 10:00 a.m. August 2ND. The price is $35.00.
Event website: www.msabgon.org
Facebook page: Beat MSA – concert event
Monarch Music Hall website: www.monarchmusichall.com
For more information about this event and support/sponsorship opportunities please contact Larry at 309-634-6357, or email@example.com.
BEAT MSA! Support & Sponsorship Information
Ticket Prices as follows: $35 per person (food, drinks and entertainment are included with cash bar available)
Interested in attending call 309.634.6357 or email Beat MSA!
This is a privately organized event. Funds raised will benefit the Multiple System Atrophy Coalition, Inc.
|Past Gettin' the Word Out! Events|
|This past year's event was held at the Gateway Building in Peoria, Illinois on March 24th. We had a great silent auction and two really good bands-Althlea Grace and her band and the Smoker's Blues Band-to provide entertainment along with an Elite 8 game on the big screen.|
|The Gettin' the Word Out! committee held the event at a newly constructed hotel in Peoria, Illinois on April 1st. Blues was on the menu as was the Final Four on the big screens. Thanks to Trigger Hippy with guests Tom Gorman & Guthrie Trapp and the Smokers Blues Band for donating their love and talents to the event.|
|Less than two months after Colleen's passing and in accordance with her wishes, her husband and friends held a fundraiser at the Fieldhouse Bar & Grill in Peoria, Illinois on April 2nd. Donations from leading college basketball programs and the community along with great hospitality by the Fieldhouse staff made for a good time.|
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